~~Please help diagnose me!!! extensive bloodwork with no abnormal results…SO FRUSTRATING!!!~~?

February 20, 2010 - 9:15 am 2 Comments

I have MANY symptoms pointing to something systemic, connective tissue involved or auto immune… especially similar to lupus, mixed connective tissue disease, scleroderma, dermomysotitis, sarcoidosis, lyme disease,lymphoma, skin cancer etc………all blood tests normal so far accept slightly low blood sugar and 1positive towards lyme 9but you need a few positive to go in that direction according to dr’s…. so does this not make any sense? shouldn’t blood work show some markers of disease especially if i have symptoms of this severity??? or are there somethings you can just never know!?? ……………….so confused!!!!
symptoms vary greatly and im getting no def answers after switching dr’s time and again seeing specialists and researching ,myself(which is relentless)
i have symptoms of:
Renaud’s syndrome, alopecea, circulatory problems(painfull swollen vessels causing hives!broken blood vessels), skin problems(acne, wounds wont heal, blood vessels leaving marks, hives), hard lymph nodes in groin as well as swollen tender lymph nodes EVERYWHERE!, weird lump type feeling inside throat(went to ENT saw rawness w/ scope but no answers) itchyness(especially scalp), DRY SKIN, W/ PURPLE ROUGH PATCHES OVER KNUCKLES THAT SOMETIMES ULCERATE, shiny tight skin on hands, many oral changes (pale coloring in several areas, red sore like marks,white lines that come and go, inflammation under tongue and on the sides in the back of tongue and inside cheeks, bumpy lining of cheeks and where my gums connect to my bottom lip w/ pronounced veins, extremely dry mouth w/ white coating–not Candida’s and its almost like my tongue and cheeks are bigger or my mouth is smaller bc i get teeth marks on my tongue and have been noticing the inside of my cheeks are in the way and i bite them more often) also: swollen pain full knees and ankles(tested neg forRA), GASTRITIS(after endoscopy), heavy periods w/ blood clots, swollen vulva and cervix(cervix has cysts that have grown rapidly)
Also ive noticed that the structures of my face have changed___ALL OF A SUDDEN !! i cant smile the way i used to my eyes are more buldging like and the creases in my face are diminishing!! its starting to cause depression and anxiety about leaving the house… please help
~~~tested neg for :LYME, RA, CELIAC, HIV, CLAMYDEA, GONORRHEA, STREP, O AND P(STOOLS), ALL BASIC CBC AND BLOOD WORK NORMAL!
I DO HAVE HYPOTHYROID AND IN 1995 I HAD A LARGE BENIGN TUMOR REMOVED FROM THE CONNECTIVE TISSUE IN MY CHEST

demand cat scan for poss sarcoidosis in lymph nodes

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2 Responses to “~~Please help diagnose me!!! extensive bloodwork with no abnormal results…SO FRUSTRATING!!!~~?”

  1. Just Says:

    I second what dek. said above,,,plus I see Bartonella,,a common co-infection in alot of your sxs. You can test for that,,but tests arent reliable. YOU need a specalist that can sort this all out. There arent many in the whole USA so be prepared to travel. See a LLMD and see if he can sort out your symptoms,,,because testing is for the birds,literally.
    References :

  2. 1shrtskrt Says:

    demand cat scan for poss sarcoidosis in lymph nodes
    References :